Showing posts with label personal news. Show all posts
Showing posts with label personal news. Show all posts

Friday, December 05, 2008

update

It's good news, at least at the moment. The cardiologist doesn't think the chest pain is related to the heart, but is probably gastric. A prescription for an antacid product and a referral to the butts and guts doc down the hall was the result of our visit, and we were on our way. Ken is relieved and feeling vindicated--he's been pointing to stress all along as the culprit behind his distress. I think most of you reading this are thinking what I've been saying to him all along (in respectable intervals, of course, so as not to sound like a nag): perhaps it's time to do something about how he handles stress. By the way, I am also relieved.

Now we are dealing with medication side effects and a husband at home. A lot. Sigh with me. Two days ago I was holding Ken's hand at his bedside in the ER and fighting back tears, and this morning I'd be quite happy to have him out and about! I don't mind having him home, I'd just like him to recognize that I have a life, too, and things that I need to accomplish when I am home. I guess the bright side is that we might finally get the tree decorated today, and the boxes of Christmas "stuff" will finally get moved from the living room.

On another note: yesterday I took part in an "alternative Christmas market" at the local high school. Sponsored by the student honor society this gathering was intended to help home-based, direct sell businesses like mine. It was open to teachers in the county and a handful of others, and considering the small target audience I did pretty well: took several orders and booked two shows, with a potential third. That's better than most booth opportunities that come along, so I'm a happy camper.

Now it's time to consider how to make the best use of my day. I guess writing my "annual report" for Sunday's annual meeting should be on the list, along with a topic for that morning's adult forum. Ideas for the latter? Have a joyful day!

Friday, November 21, 2008

good news, bad news

I remember a book from "somewhere in my youth and childhood" called Fortunately. My adult reflection backward is that the theme of it was that all things have a flip side, and we can choose how we look at what is in front of us. It goes something like this: "Fortunately Ned received an invitation to a surprise party. Unfortuantely the party was a thousand miles away. Fortunately a friend loaned Ned an airplane. Unfortunately the motor exploded. Fortunately there was a parachute in the plane. Unfortunately there was a hole in the parachute..." You get the idea.

We've had that kind of week here. A few weeks ago Ken began to experience chest pains, and then had episodes of shortness of breath. We got him to the doctor last week, and a few days ago he had a stress test. The doctor called Tuesday afternoon with the results, and they weren't good. A normal, healthy heart pumps blood from the left ventricle (what is called an ejection fraction: EF) at a capacity of 50-55%. Ten or so years ago Ken was diagnosed with a cardiomyopathy, which is essentially a weakness of the heart muscle that results in inefficient pumping from that left ventricle. His EF then was 26%. At 25% the heart is generally in need of a transplant, if it is pumping sufficiently at all. The ejection fraction from this week's stress test was 30%.

Initially we weren't able to get an appointment to see the cardiologist for follow-up for two weeks, but this wife wasn't happy with that schedule, and we were able to get in yesterday. In the intervening 48 hours we lived in a state of numbness and anticipatory grief. Ken faced the possibility of having to give up his business and livelihood, and it would be the second time his health would force that hand. Every other sentence started with the word "if," or assumed that the news from the doctor would mandate what we feared.

The good news is that the doctor believes that medication, along with a regular exercise routine, will be sufficient to get Ken back on track. He will need to take it easy for a little while to allow the medication to take effect, but the doctor has not restricted his activity. We are relieved, and very grateful.

Still, we learned from the doctor that Ken's story is outside the realm of statistics. Most cardiomyopathy diagnoses don't live more than 5 years. He's gone ten. Most diagnoses result in an average of 3 hospitalizations a year. He has had none since the first diagnosis. In many respects he is a walking miracle. We are also in territory that is totally unknown.

We are taking each day as it comes, and imagining that we have years to come. We can do no less. For richer, for poorer, in sickness and in health--we're there, we're doing it. As a colleague of mine states the request, we covet your prayers.

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